As you know, the Friends of Kevin Neary (FOKN) will host the inaugural FOKN Golf Outing on Monday, September 16, 2013 at the Wyncote Golf Club in Oxford, Pa.

We seek your help.

The event, set for 9:00 a.m. to 2:30 pm, will celebrate Kevin’s 31st birthday and help raise funds to support his continued medical care and other unmet needs.  (Reminder:   The KN Special Needs Trust is NOT a charitable trust; gifts to the trust are NOT tax deductible.)

All are invited for a fun day of golf, lunch, prizes and a silent auction –to benefit Kevin!

We hope to have 108 golfers attend.

How can you help?

We need golfers (and thank all of you who have already signed up)!  Consider signing up, passing this message along to friends, and helping us promote the event. If you are thinking about signing up and have question please contact anyone of us!

Register online at: http://fokngolfin.eventbrite.com/#

We need sponsors!    Whether or not you plan to golf, please consider sponsoring the event.   Check the site for more details.

For further information on donors, please contact:

Bill Burland at burlandbill@gmail.com

We need silent auction items!   Would anyone reading this consider donating an item for the silent auction, or passing this message on to someone who might donate?    Sporting events, sports paraphernalia,  restaurants…..we’d like to get two dozen great auction items.

We need swag bag items!   Have something  to offer?   Have any ideas we should consider?   Bottled water, keychains, tees, trail mix, mugs, visors, snacks, something else?

For further information or suggestions for auction items or swag bag donations, please contact:
Kellyc51@comcast.net.

We have been overwhelmed by the kindness  and generosity people have shown for past fundraising events, and appreciate so much your letting us reach out to you again.

The biggest news we have to share is that Kevin is now getting settled into his new section of the house.  Thanks to the hard work of so many volunteers, Kevin has been spending the past 2 weeks getting acclimated to the new surroundings. 

One of the newest features that has really improved this for the nurses, our dad and Kevin is the automatic lift system.  Having this in place cuts the time it takes to get Kevin in and out of bed, into the shower or into his chair.  It is also much safer and more comfortable than the portable lift we have been using for the past year.   Thanks to Closets by Design, Kevin’s space is well organized and his belonings are finally getting uppacked and moved out of storage in the basement. it is really starting to feel like his place.

There are a few things that are still in the works.  The outside railing for his ramp, a new deck to create an accessible outside space and of course finding the right furniture are all in progress. Here are a few pictures to give you an idea of how things are coming along.

Now that there is a little bit more space we want to encourage everyone to visit Kevin as often as you can. As much as he would love to be able to pick up and head into the city or take a trip to see his friends and family, the logistics are sometimes a bit daunting. So if you can swing by, even for a little, I am sure he would appreciate it.

One final note, registration is open for the FOKN Golf Outing this September.  Please visit http://fokngolfin.eventbrite.com/# for more information. (Thanks to Jessica Ewing for creating the event poster!)

Save The Date – FOKN Golf Outing!  Monday, September 16, 2013

Registration is now OPEN at  http://fokngolfin.eventbrite.com/#

We’re celebrating Kevin’s  31^st birthday with the Inaugural FOKN Golf Tournament  to help raise funds to support his continued medical care and other unmet needs.

Bring your family, friends and coworkers for a fun day of golf, lunch and a silent auction!

What:  FOKN Inaugural Golf Outing

When:  Monday, September 16, 2013    9:00 a.m. – 2:00 p.m.

Where:  Wyncote Golf Club, Oxford, Pa.  http://www.wyncote.com/

Why:      KEVIN!

Register :   http://fokngolfin.eventbrite.com/#

Contact:    Bill Burland at burlandbill@gmail.com or Chris Kelly at kellyc51@comcast.net

We just wanted to share a few new photos of some of the new equipment that was just installed in Kevin’s space.  First we added a new security system to help monitor Kevin at night and give him a little more privacy. Also added are new power lifts.  For those who visited Kevin at Magee Rehab Hospital you have seen these before.  These lifts will allow for smoother, safer transfers in and out of his bed and shower.  We also included a photo of the new bathroom tile in his shower.

We will share more as we finalize his space.   Again, thank you all for all you do for Kevin and our family!

Just a quick up date to highlight the new floors in the addition.  This is one of the last steps before Kevin gets to move in to his new surroundings. In the photos here you can see the watertight flooring in the bathroom, the view from Kevin’s room with the bathroom to the right and the main room and kitchen through the doorway, a view of the main room looking towards a sliding glass door where a deck will go this summer and a view of the new ramp access into the kitchen.

Thank you all! More to come soon!

  th

Well there is not too much new to report, so we thought we would share some pictures.  The siding is nearly complete, the bathroom in Kevin’s room is moving right along, and the closet doors have been added.  You can also see that the ramp from Kevin’s living space to the kitchen is in and the old windows have been removed!

These finishing touches should be complete in the near future and Kevin will be moving into his new space in the very near future.

We wanted to share some new photos of the addition.  It gets closer and closer to being complete each day.  The crew just put on a fresh coat of paint on the inside and some new siding on the exterior.

Just a quick update.

We wanted to remind everyone about the Cuts for Kevin event at Lakshmi Salon in Philadelphia.  The event runs from 11 – 2 today.

Kevin had hoped to make the event, but due to some blood pressure and temperature issues that forced some hospital visits, Kevin will need the day to rest and recooperate. If you had planned on visiting the house today please call ahead.  Kevin got home from the hospital around 5:30 this morning and will be trying to catch up on some sleep. Wea ll know how quiet and restful emergency rooms can be…

In other news, the drywall and the siding on the addition are almost complete.  We will post more photos in a day or two.

Thanks everyone!

We wanted to share that Lakshmi Hair Studio in Philadelphia will be holding a fundraiser for Kevin on Sunday, January 20th from 11 – 4.  Appointment times are going fast so please call 215.923.2272 to make yours today. Haircuts are only $40!  Here is the flyer with all of the details: cuts_for_kevin We can’t thank the group at Lakshmi enough!

We hope everyone had a safe and enjoyable holiday season!  We were able to spend some quality time with family over the holidays, which was great. Kevin made it home from the hospital on Christmas Eve and enjoyed seeing people over the holidays.  He’s been out and about several times recently and has stayed healthy. With the addition moving along, we’re hopeful that 2013 will be a healthy and productive year!

We have a few updates we wanted to share. Last week, Kevin had a small procedure done at Jersey Shore Medical to put in a new transmitter for his breathing device.  It seems to be working well.

The addition is also coming along very well.  The electrical and plumbing have been put in, as well as the doors and windows.  The siding will be going up soon.  We’ll get a few photos and post them soon!

We also wanted to let you know about an event being held by Lakshmi Hair Studio on January 20^th.  Come get your hair cut and support Kevin! Details are here:

https://es.salontranscripts.com/cgi-bin/viewmailing?oid=9325a6c650e7094169190a00&mailing=9713a36250e7094169190a00

Special thanks to Kevin’s dear friend Joe McIlhenny for putting this together!