Better days… and a golf update…

In case you Delaware County Daily Times recently ran an article on Kevin.  Please check it out at

http://www.delcotimes.com/articles/2013/08/24/news/doc521820654fe3d907484368.txt

Forget back to school…embrace back to golfing!
The Friends of Kevin Neary tournament is just over two weeks away, on September 16, at Wyncote Golf Club. Things are humming.

The Fanatic’s Brian Startare will emcee what promises to be a great day of golf, fun, and friendship. Get your ticket while you can!
All eighteen holes now have sponsors—-there are still additional sponsorship opportunities. http://fokngolfin.eventbrite.com/

New fantastic items for the silent auction and the raffles are arriving every day.
The FOKN swag bags are filling up. (We’ll will add a program PDF, listing all of that good stuff, before the big day.)

And of course, THE attraction of the day—Kevin will be there!
Please plan to join us! Hope to see you there!

Golf not for you? Please consider making a donation, at http://kevinneary.com/kevin-neary-trust/
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Ideas for sponsorships? Please contact burlandbill@gmail.com
Ideas for auction or swag bag items? Please contact Kellyc51@comcast.net

No news is good news…

It has been almost a month since our last post.  We are happy to share that over the past few weeks things have been relatively stable for Kevin.  With the warmer weather it has been much easier to get Kevin to a few Phillies games this season.  Also Kevin was able to attend our cousin Lauren’s wedding.  Here is a photo of all of the cousins on our mom’s side of the family, including the newest addition Michael Walsh.  Welcome to the family!

lauren wedding pic

 

Other updates:

FOKN WEBSITE
It hard to believe that we have been posting on here for 21 months.  In that time   we have had 188,873 hits(just over 11,000 to reach 200,000 hits!) and have 489 following Kevin’s story through our email updates.  Thank you again to each and every one of you who follows Kevin’s progress.

GOLF OUTING
Just a reminder that the golf outing is just about a month away.  We have a great day of golfing and fun in support of Kevin.  If you have not signed up please do so right away!  Anyone interested in sponsoring a hole please be sure to do so before August 19th so that we have time to have signs made.  Anyone interested in doing so can contact Bill Burland at burlandbill@gmail.com.

More information can be found at https://fokngolfin.eventbrite.com/

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Thanks again!  And remember Kevin loves visitors! Please come see his new space!

Event update!

Thank you to everyone for your kind words following the Penn Gazette story. We are so thankful for you to take the time to read the story, share it with others and to express your support for Kevin.

We want to share a quick event update since it is almost here!

The Friends of Kevin Neary tournament is just two months away, on September 16, at Wyncote Golf Club.

A quick review of some of the things in the works.

The Fanatic’s Brian Startare will emcee what promises to be a great day of golf, fun, and friendship.

Reserve your ticket now; they are moving!

http://fokngolfin.eventbrite.com/

Ten sponsors have already nabbed golf holes; only eight left!

So many people working on this event!  Kevin’s supporter and friend extraordinaire, Bill Burland, is a one person promotion machine, encouraging ticket sales and sponsorships.  Kevin’s family…..especially Aunts Marianne and Denise, Uncles Steve and Chris, cousins Jennifer and Jeff and brother Joe are all working on the event, supported by so many of the FOKN crew.

Jessica Ewing  put together the stunning event poster.

Silent auctions in hand, or promised, include:
four (great!) Eagles/Cowboys tickets, October 20
an Eagles football signed by Jeremy Maclin
a Dunkin Donuts gift basket
a Reading Terminal Market gift basket
a Ryder Club 2012 money clip (donated by the PGA)
a Scotland Run Golf Club package
a Simon and Schuster golf book package
Sixers’ Damian Williams autographed photograph
WIP show visits

Start planning your bidding strategy; those are some great items!

Each golfer’s goodie bag will include:   golf balls, tags, towels, tees,
bottles of water, snacks compliments of Herr’s and Tastykake, a Golf Channel promotional tee package, a Dunkin Donuts gift certificate and a $10 Golf Galaxy Coupon!

We are grateful for all of these generous contributions, and reliable reports suggest that more are on the way!

And of course, the biggest attraction of the day—Kevin will be there!

Please plan to join us!   Hope to see you there!

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Any ideas for sponsorships?   Please contact burlandbill@gmail.com

Ideas for auction or swag bag items?   Please contact Kellyc51@comcast.netImage

Special note…

Before we share the most recent update, with Father’s Day just around the corner, we wanted to be sure to thank our dad for everything he’s done for and continues to do. Without him, we don’t know where we’d be. So many have given so much of their time, skill and personal resources to help take care of Kevin. But our Dad has been there through it all. So Dad, thank you for all that you do. We love you and couldn’t do all that we do with out you.
As many of you know, our dad is a kind of a baseball fan — and an even bigger fan of the Phillies. This past weekend he and Kathy were able to make a quick trip up to the Baseball Hall of Fame in Cooperstown, NY. We wanted to thank everyone who came to the house for the weekend to help make the trip possible. Here are a couple pictures from the trip:

dad cooperstown 3dad cooperstown 2  dad cooperstown 1

And now an update on Kevin.
Speaking of the Phillies, Kevin went to his first Phillies game this season on June 2nd and stayed until Charlie pulled Cliff Lee with a 7-1 lead. The bullpen made it hairy but the Phils won and Kevin had a great time. We took both of Kevin’s nurses to the game (Chris L. and Chris B.), got a free tee shirt, and the seats worked out great. Looking forward to getting to more games more often.
Kevin also had an appointment at Magee to look at assistive technology and came home with some pretty interesting ideas for things that will help Kevin to communicate more easily. We ordered a phone system which should be installed in late June and which Kevin will be able to utilize through his head array. Once we get it up and running we think it will be of great benefit to Kevin and will give him more ways to communicate with his friends and eventually utilize when he gets back to working.

The addition to the house is almost completely finished and Kevin is getting used to the new accommodations. He has more freedom to move around and more room/privacy to have guests. It has been a real help, and we are tremendously grateful to everyone who helped make it happen. Please feel free to stop in to see Kevin. (It always helps to call first to make sure we’re home.)

FOKN Golfin’ Update

The golf tournament is fast approaching and we urge you to sign up as soon as possible. As of today twenty five percent of the slots are sold and we have commitments for five to ten more foursomes. Don’t get shut out of this fun event! If you know anyone that would like to contribute prizes or giveaways to the event please let Bill Burland (burlandbill@gmail.com) know.

Sign up today: http://fokngolfin.eventbrite.com/#

As always, thank you all!

Just in time for summer…

One more piece of the addition is now complete.  Thanks to the hard work of a volunteer crew a new deck has been added to the house that Kevin can easily access.  Now Kevin can enjoy the warm weather by going out the side door or the back door we just installed that will connect to the kitchen.  One of the next steps our dad is taking is to reconfigure a few parts of the house to give some of the hallways and rooms just a little more clearance and some more direct lines of sight.  Here are a few pictures of the new outside space.  Please stop over and check it out! As always, thank you all for your continued support!

photo 2 photo 5 photo 4 photo 3 photo 1

FOKN Golf Outing Update!

As you know, the Friends of Kevin Neary (FOKN) will host the inaugural FOKN Golf Outing on Monday, September 16, 2013 at the Wyncote Golf Club in Oxford, Pa.

We seek your help.

The event, set for 9:00 a.m. to 2:30 pm, will celebrate Kevin’s 31st birthday and help raise funds to support his continued medical care and other unmet needs.  (Reminder:   The KN Special Needs Trust is NOT a charitable trust; gifts to the trust are NOT tax deductible.)

All are invited for a fun day of golf, lunch, prizes and a silent auction –to benefit Kevin!

We hope to have 108 golfers attend.

How can you help?

We need golfers (and thank all of you who have already signed up)!  Consider signing up, passing this message along to friends, and helping us promote the event. If you are thinking about signing up and have question please contact anyone of us!

Register online at: http://fokngolfin.eventbrite.com/#

We need sponsors!    Whether or not you plan to golf, please consider sponsoring the event.   Check the site for more details.

For further information on donors, please contact:

Bill Burland at burlandbill@gmail.com

We need silent auction items!   Would anyone reading this consider donating an item for the silent auction, or passing this message on to someone who might donate?    Sporting events, sports paraphernalia,  restaurants…..we’d like to get two dozen great auction items.

We need swag bag items!   Have something  to offer?   Have any ideas we should consider?   Bottled water, keychains, tees, trail mix, mugs, visors, snacks, something else?

For further information or suggestions for auction items or swag bag donations, please contact:
Kellyc51@comcast.net.
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We have been overwhelmed by the kindness  and generosity people have shown for past fundraising events, and appreciate so much your letting us reach out to you again.

Getting Settled….

The biggest news we have to share is that Kevin is now getting settled into his new section of the house.  Thanks to the hard work of so many volunteers, Kevin has been spending the past 2 weeks getting acclimated to the new surroundings. 

One of the newest features that has really improved this for the nurses, our dad and Kevin is the automatic lift system.  Having this in place cuts the time it takes to get Kevin in and out of bed, into the shower or into his chair.  It is also much safer and more comfortable than the portable lift we have been using for the past year.   Thanks to Closets by Design, Kevin’s space is well organized and his belonings are finally getting uppacked and moved out of storage in the basement. it is really starting to feel like his place.

There are a few things that are still in the works.  The outside railing for his ramp, a new deck to create an accessible outside space and of course finding the right furniture are all in progress. Here are a few pictures to give you an idea of how things are coming along.

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ImageNow that there is a little bit more space we want to encourage everyone to visit Kevin as often as you can. As much as he would love to be able to pick up and head into the city or take a trip to see his friends and family, the logistics are sometimes a bit daunting. So if you can swing by, even for a little, I am sure he would appreciate it.

One final note, registration is open for the FOKN Golf Outing this September.  Please visit http://fokngolfin.eventbrite.com/# for more information. (Thanks to Jessica Ewing for creating the event poster!)

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Save The Date – FOKN Golf Outing – 9/16/13

Save The Date – FOKN Golf Outing!  Monday, September 16, 2013

Registration is now OPEN at  http://fokngolfin.eventbrite.com/#

We’re celebrating Kevin’s  31st birthday with the Inaugural FOKN Golf Tournament  to help raise funds to support his continued medical care and other unmet needs.

Bring your family, friends and coworkers for a fun day of golf, lunch and a silent auction!

What:  FOKN Inaugural Golf Outing

When:  Monday, September 16, 2013    9:00 a.m. – 2:00 p.m.

Where:  Wyncote Golf Club, Oxford, Pa.  http://www.wyncote.com/

Why:      KEVIN!

Register :   http://fokngolfin.eventbrite.com/#

Contact:    Bill Burland at burlandbill@gmail.com or Chris Kelly at kellyc51@comcast.net

 

 

New equipment…

We just wanted to share a few new photos of some of the new equipment that was just installed in Kevin’s space.  First we added a new security system to help monitor Kevin at night and give him a little more privacy. Also added are new power lifts.  For those who visited Kevin at Magee Rehab Hospital you have seen these before.  These lifts will allow for smoother, safer transfers in and out of his bed and shower.  We also included a photo of the new bathroom tile in his shower.

We will share more as we finalize his space.   Again, thank you all for all you do for Kevin and our family!

camer system room with cameras Bedroom lift Shower tile photo 2

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